He has made everything beautiful in its time. He has also set eternity in the hearts of men; yet they cannot fathom what God has done from beginning to end. - Ecclesiastes 3:11, NIV

Tuesday, April 30, 2013

Break-Ups Are Worse Than Cancer

Over the last 6 months or so, I've had a number of friends - close and peripheral - tell me I should write this blog entry.  After some prayer, and wise counsel, I've decided to put pen to paper for God's glory.  This is not an easy entry for me to write because it is rather personal in nature, but my prayer is that it would be used by God to bring encouragement to those who weather issues of the heart.  So, now I set aside my own pride of wondering what people may think, or say, or do; and allow God to have my pen, praying the words come from His heart.

Within a year's time, I've had to weather both, a very painful break-up AND a stage 3 cancer diagnosis.  Which one has been more challenging to deal with?  Hands down, the break-up.  I had been dating a man for some months who said he wanted to marry me.  By his idea, he took me to try on engagement rings, we had discussed wedding plans (we even had a song!), we met each other's families, and he had even been the first to tell me that he loved me.  Though I had to work through some of my own fears, I arrived at a point through much prayer by the leading of the Holy Spirit to move forward with this man.  However, it all unraveled in a short period of time, maybe a week or two.  It appears he began to become more in love with a fantasy he created in his head, (out of his own fear of committing) instead of with me.  He shared with me that he had always felt God wanted him to marry a woman with brunette hair (I was blond), that he would meet her at church (we didn't), that she would have never had plastic surgery (I did nearly ten years ago for a medical reason), and that for some reason he said he always thought her name would be 'Grace.'  I wish I was making this up, but as you can imagine, I was devastated.  Years of hopes and dreams to be a wife and one day a Mom were shattered so quickly.  The hopes and dreams of my family, his family, our friends - completely crushed.  I felt so incredibly deceived, not even sure how to process the pain in the months that followed.  I felt so very alone, but by God's grace, He drew me closer to His heart. 

He tends his flock like a shepherd: He gathers the lambs in his arms and carries them close to His heart;  He gently leads those that have young. - Isaiah 40:11, NIV

About 10 months later, on an idle Tuesday afternoon, I received a phone call that would forever change my life.  I was diagnosed with full-blown malignant melanoma, and after a surgery, then discovered that it had progressed to stage 3.  Another, more extensive surgery was needed, which would forever impair my immunity by removing part of my lymphatic system.  Then nearly a year of chemotherapy was in my future.  After that phone call, my first thought was to ask for prayer.  I did not want to be angry at God, and I definitely did not want to doubt God's kindness or His goodness.  In the days, weeks, and months that followed, brothers and sisters in the Lord poured out love all over me.  God was using them to touch my heart Himself.  People brought over meals, people offered to come watch movies with me, people offered to come play board games with me, people offered to take me to doctor's appointments, people sent scores of notes and emails of encouragement, people were always asking how they could help.  I felt so cared for, so loved.  And then it hit me....

The break-up was so much harder than dealing with cancer.  I thought about that, and it made me think A LOT about the human heart condition.  The human heart wants so badly to be loved, and it is such a tender thing.  Perhaps this is one reason the bible tells us to guard our hearts...

Above all else, guard your heart, for it is the wellspring of life. - Proverbs 4:23, NIV

I then realized, why don't we respond this way when one of our brothers or sisters goes through a heart issue?  Why are we not rushing to their side to bring them food, clean clothes, comfort, encouragement, compassionate company?  My first thought would be, "well I don't want to make them uncomfortable, it's too personal."  But to be honest, cancer is also personal, far more personal than anyone may realize.  Cancer is frightfully uncomfortable, and just as debilitating as a broken heart.  I say this so women, and whomever else, might know that it is ok to ask for help in the midst of a hurting heart.  A physical wound or illness will take its course, but wounds to the heart can be known to kill a man before he actually physically dies which is far more painful.  To be honest, I don't sit around wondering if my doctor thinks I'm attractive, or if he is going to text me, or if he's thinking of me, or if he misses me.  I don't wonder if my doctor is going to call me, or what he thinks about me, or any issue of the heart.  No, it's not like a break-up.  There is an enemy named cancer, and we must fight it.  Period.  However, a heartbreak is so much more complicated.

To be honest, I've struggled with anger towards God from a broken heart far more than I have battling a life-threatening illness (I believe this is because the hurt was greater).  But much like any relationship, you work through anger, you work through pain, you work through hurt.  Fortunately, when that relationship is with Christ you will ALWAYS find that He has carried you all along.  His arms have been open out of unconditional love all along, He has never left you.  And then you can remember the story of Sarah and Abraham, when Sarah wanted a child not in God's timing, an entire line of chaos and historical shift occurred out of her selfish, impatience.  Sin drives us to rush into problems, and it also causes us to leave relationships which sanctify us.  God is trustworthy.  We can trust Him with our tomorrows, trust Him with our health, trust Him with our hearts, trust Him with our relationships, He isn't going to steer you wrong.  So what if you never beat cancer?  God is STILL trustworthy and on the throne.  So what if you never get married?  God STILL has your best in mind.  Far more hurt has come from our own fears, impatience, and selfishness when it is so much easier for us to surrender to life He has for us - and to know that life is nothing but GOOD!

My challenge to myself - and to others reading this - is to love better.  Love deeper.  Get invested.  The Greek word for "compassion" means to "suffer with." I pray we become people who will suffer together, walk alongside each other in the midst of heart trials AND health trials.  Broken hearts need just as much care and attention as any person experiencing physical pain.  Be at ease in the midst of your hurt and know that God is there.  My prayer that we, as a church, can suffer with you.   Think of a broken heart the way you would think of cancer!  I promise you, allowing God to use you to apply balm on any wound - emotional or physical - will bless you, and allow you to selflessly love one His own lambs.  For each person who has walked with me through both - you are few, but I am beyond grateful for your heart and your selflessness.  You've picked up broken pieces even when you didn't have to. 

The beautiful thing about brokenness is when the pieces are all picked up and glued back together, you have a beautiful mosaic.  Mosaics are for more precious than the whole piece of colored glass.  We can allow God to use us, by His hands, to be the glue that puts His mosaics together.

Tuesday, April 9, 2013

November 16th

Today was a day full of doctors appointments, and there is good news and bad news.  I'll start with the good news:  So, the oncologist said that NO matter what, my last Interferon injection will be November 16th!!!!!!! Yes, that's right, mark your calendars - in pen, not pencil, November 16th is the last day of this horrendous and miserable drug.  Send out the media advisory, write a press release, throw a party, shout from the rooftops, call up your mother, brother, grandma, and her dog - the war will be over!  And, I will never EVER have to take Interferon EVER again, EVER.  Even if the cancer comes back (which we pray it does not), the oncologist said he would put me on a new drug called Yervoy which is like the Lamborghini of drugs for treating malignant melanoma.  The oncologist said my treatment would not be prolonged even if they have to take me off the drug for a short time between now and November 16th.  Of course, that day cannot come soon enough!

Furthermore, he explained to me that out of all the treatment options for malignant melanoma (regardless of stage), that mine is by far the worst.  Why is it the worst?  Well, simply because there hasn't been enough research for malignant melanoma patients with stage 3A and better.  I qualified for a clinical trial when this mess started, but opted out of the trial because I had a 33% chance of receiving the placebo drug (aka saline solution) and I didn't want to chance it.  I don't understand, but I know God does.  I don't have to understand anymore, I just take each day as it comes.  We're not promised tomorrow.  Each breath has a purpose, thankfully.  I admit, part of me wants to throw in the towel sometimes and just say, "That's it!  I'm done with this, I'll take my chances!"  But, as a fellow warrior in the fight once told me, "you've come this far, why stop now?"  He was right.  Life is a precious thing, and regardless of how many trials it has, it is still a gift we have from God Himself.  I just pray He uses all this mess for His glory, and I know God has a long track record of turning junk into something beautiful.

The Lord will fight for you; you need only to be still. - Exodus 14:14, NIV

So, the bad news:  I have to go back to physical therapy.  Yes, I think once or twice a week until October.  The side effects from chemotherapy have been so exhausting that my pain management doctor at the National Rehabilitation Hospital thinks physical therapy is necessary.  I'm not strong enough to hire a personal trainer, that would most likely be too intense.  So, he's having me go to the physical therapists at the hospital.  Furthermore, I've been having some intense neck pain the last couple of weeks.  To be honest, I've been sore still from surgery since November but its been really minimal soreness, nothing to write home about.  But now its awful.  The doctor gave me three different injections of muscle relaxers in my neck to help today, so I'm hoping that makes a difference.  It hurt, and felt SUPER weird. 

In other news, I had a blood draw today and should get the results back tomorrow afternoon or Thursday.  The results will tell us my white blood cell count, liver enzymes levels, platelet levels, and neutrophil count. 

I'm leaving for Houston, Texas on April 19th and returning to Washington, DC on April 29th.  I'm in a friend's wedding, and working at our Houston office for a week.  I'll be staying with my grandma, who used to be a nurse, so I can't wait!  Traveling with my chemo drugs will be a new experience.  Work has been great, I love my job, so I have to be extra careful since I'm not very good at saying "no" to workload at times.  I could use some prayer there.  So, my doctor got a bit fussy at me saying I need to rest/sleep more than I am now. 

Well, its late, so I'm wrapping this one up.  My Mom comes to visit this weekend, so that will be nice.  Nothing like your Mom to take care of you!  So grateful for the prayers, and for the encouragement as I continue to adjust to a "new normal."

Saturday, April 6, 2013

96 to go...

It's late, I know.  Tonight marks another injection done, and 96 more to go.  I calculated it out, and the last injection I will EVER have to take of Interferon is supposed to be November 16, 2013.  Now I know half of you are saying, "that's it?!" and half are saying, "oh my gosh, that's forever!"  Well, you both are right.  Maybe there isn't a "right" - but yes, it does FEEL like a really, really long time.  However, I'm trying to think, "that's it?!  that's all?!  I can do this!"

When people ask how I'm doing, I'm not super sure what to say anymore.  I feel crummy all the time, but I do still love my life.  Sure, I'm exhausted all the time, sick most days, and feel like a slug.  But I've come to see that life is simply beautiful, even when you are sick.  Maybe it's because I'm sick that God has allowed me to see it so differently, so up close, so graceful.  It's hard to explain I guess.  But I think anybody can see it this way, you just have to change your lens.  You see, the whole "I appreciate life because I see how fragile it is" way of thinking hasn't left me.  And I don't think you need to contract a life threatening illness to experience a change in lens.  Here's what I mean:  every smile carries infinite value, every laugh is packed full with joy, every unopened present was once wrapped by someone with care who was excited to see you open it, every hug is meant to comfort, every "hello!" is someone acknowledging that you exist to them, every prayer for someone is more holy and kind than we can imagine, and the list could go on.  We all witness life around us everyday, but do we see it?  I mean, really see it?

Hair, do we really need it?  Ha!  More of my hair has come out.  I've come to dread washing my hair, but that's part of chemo drugs.  My hair has stopped growing also.  How do I know?  Well, I had my hair highlighted about two months ago and I have NO roots.  Now, every woman that highlights her hair that is reading this will know the incredible benefit this is!  Hey, there is an upside!  I haven't had to get any new highlights in my hair because the old ones have not grown out, at all.  It's weird, but hey, I'll take it!  Medically, some would say my hair has stopped growing because my body uses all its nutrients and energy to take care of the distressed areas (i.e. wherever the melanoma is, my liver, white blood cells).  When the body is under such distress, it shuts off unimportant areas like hair growth to conserve energy.  This is what I hear.

I'll make this a quick update, but I just wanted to say thank you for your grace.  You, yes you who reads this.  I'm reading a book right now called, "When People Are Big and God is Small" by Edward T. Welch.  (I highly recommend it!)  I've learned that I've given so many people such influence over my life simply because I have feared them and not feared God.  In other words, I've been a hardcore people pleaser.  Perhaps this is something I will always be working at, along with my other fellow people pleasers.  But I can tell you, having cancer has magnified this in me because I'm not sure how to handle it half the time.  So, I'm forever grateful for your grace.  I know in this season of my life, I can be a pretty crummy friend.  I may not be the best at being there for you, or anyone, because quite frankly, I'm too sick to do much.  My capacity is limited, and I don't like it one bit, but it's where I'm at in life.  Therefore, I'm thankful.  Thankful for your grace, your understanding, and your patience with me as you pray for me and walk with me through this trial.  ONE day it will be over!

A thousand times I've failed
Still your mercy remains
Should I stumble again
Still I'm caught in your grace
Everlasting, your light will shine when all else fades
Never ending, your glory goes being all fame.

-- Hillsong United, from the song 'Inside Out'